Day +58

Rachel and I did make it to church on Sunday and we enjoyed being in a worship service again. The people of Southtown are so welcoming. Other than that it was a pretty quiet weekend. The weather is getting cooler with highs mostly in the 50's...which is about perfect for me, but Rachel is freezing. Rachel had a clinic appointment today and it was an overall good visit. Her ALT is still running high and they have readjusted her meds again to try and get this to come down. We talked to the doctor today about the possibility of leaving at the end of October. We didn't get a definite answer but he did say he would consider it. When they were looking at the med list he said since they are getting us ready to leave that he thinks we should stop the mucomyst, which is the IV med she gets 3 times a day...so after Wed. we do not have to do that anymore....YAY!!
We are still very hopeful that we will get to leave at the end of October, but if we don't we are still so thankful that things have gone as well as they have. We don't yet know the out come of the disease...if she will be able to get her mobility back. We are still hopefully and so are the doctors, but she is alive, doing well and engraftment did take place. That is not the case for everyone that goes through this procedure so we keep pressing on and praising God for where we are.
Prayer requests:
ALT goes down
No infections
Mobility improvement
Getting home