Day +48

Today Rachel had an appointment with the neurologist. He is not sure why she is worse at this time, but had several ideas. He thinks part of it has something to do with one of her meds Gengraf..which is a graft vs. host drug. She will be on this medicine until day 180 and then they will slowly decrease her dose. The doctors also think that she is still early in the transplant process and sometimes you see a decline in the disease before things turn around. So we are just in kind of waiting game.
Rachel also had a physical therapy appointment today and the therapist was very helpful in giving us techniques to help Rachel with her transitions...moving from wheelchair to a chair, bed, shower etc. So we keep praying and waiting to see improvements in her mobility. Rachel is feeling good tonight, but had stomach cramps most of the day today. Don't really know why...but glad she is better tonight.
Tomorrow we plan to just enjoy having Jim here we have no appointments. Hope everyone has a good weekend.