Monday, September 28, 2009

Day +51

We are very excited to be on the downward slide of 100 days!!! Jim is back home and we were sad to see him go, but glad he got to stay a little longer due to bad weather and canceled flights. Rachel had a clinic appointment today and it went well. Doctors are concerned about a couple of the meds she is on causing her ALT levels to rise which can cause liver damage. So they have taken her off of this anti fungal drug that she is taking to see if these levels will come down. They have also decreased the nausea drug she is on for the same reason. Her nausea is much better so hopefully she will be able to cut back on this med and it not be an issue. They think she is doing very, very well. The nurse practitioner said she is going to talk to the doctor about the possibility of us being able to leave by the end of October!! We of course are very excited about this possibility, but realize we probably won't know for sure for a few weeks. They of course want this ALT issue resolved and to continue to see improvement, but today was the first time they actually talked about the possibility of a leave date before day 1oo. I do think getting home would be great medicine for Rachel. So we are a little hopeful today. Please keep praying for these issues as well as the mobility issues. Kim our care partner is coming tomorrow night...Tuesday. Next clinic date is Thursday.

2 comments:

  1. Oh my goodness. That is the best news I've heard in a while. Would that be about 20 days early? Wow! Would you still have to go back on day 100? Oh, my goodness! Praise God for miracles. I started to say small miracles, but I think this is a huge miracle.

    Love,

    Janet

    ReplyDelete
  2. Wow!! What an answer to prayer that no one would expect! We will keep praying, because you are right, that would be great medicine for Rachel!

    Love you guys!!
    Mary Sue

    ReplyDelete