Thursday Rachel had an appointment at the Gillette Children's Hospital in St. Paul. This was at a gait/motion clinic. They took video of her walking and turning to have a pre-transplant marker. This will help them determine if the transplant was successful in stopping the progression of the disorder. Rachel still had a headache from the spinal tap so we went back to the clinic where they gave her a caffeine IV. She felt a little better for a while, but the headache came back in the evening.
Today, Friday, she is feeling better so far. Rachel was suppose to get the central line put in today, but they changed that to Monday and then she will be admitted to the hospital at that time. Looks like actual transplant will be on August 8th. Marrow will be drawn from the donor on the 7th, but it won't get to the hospital in time for Rachel to receive it until the 8th. Today we are headed to Rochester to the Mayo clinic to see the neurologist Rachel has been seeing there.
Rachel
- About Rachel
- Arkansas, United States
- Classical music listener, broadway musical lover, Jesus worshiper, Dr. Quinn watcher, clarinet and piano player, theatre actor, cat lover. Rachel is having a bone marrow transplant and this blog is dedicated to her journey, as told by her mother, Jill.
The Family
Mom (Jill), Dad (Jim), & Rachel
Jill, Brittney, Meredith, & Rachel
Sisters
Aunt Rachel and Eli
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